And the Storm Rages On

It isn’t easy for me to be vulnerable.

I remember a friend from cohort saying to me once that I was very open by not very vulnerable, and I was upset by that statement, because I didn’t think it fair to separate the two out in that manner.  Being honest was, in my mind at that point, being vulnerable.  Now I understand more fully that there is a difference, and that Chris was correct in his assessment.  It is easy for me to tell the truth, and it is hard for me to be open about how that truth can harm me—how exposing the heart of me is different from exposing the facts of my situation.

I was recently quite vulnerable about the financial situation that I find myself in, and the subsequent challenges that my daughter is experiencing.  I let people know how hurt and frustrated and damaged and judged and punished I was feeling as a result of all sorts of things that are far beyond my control.  And I didn’t shy away and rewrite and edit and try to add decorum or lessen the blow of my emotions.

Overall, the response was positive.  I had a few people who commended my authenticity and vulnerability in stating not just the true facts, but the challenge of my own feelings about those facts.

But there was one response that has been eating away at me for days now, and I can’t help but craft some sort of retort.  I won’t start some strange, heated Facebook argument about it, however.  So, instead I want to address it here, and, hopefully, give it a worthy apologetic.

After lamenting that my daughter was forced to drop out of her educational program just 6 weeks prior to graduation due to financial constraints, and noting that my own challenge of being trapped in cycles and systems that keep me in an impoverished state, rather than offer me the chance to thrive—both of which I consider to be rather unique to me in my particular circles of acquaintance and/or influence—I received this comment in reply:

It’s not just you, Christy.  Nor is or (sic) just single income households. The economy is tough and there are a lot of people that I know right now that are struggling to keep the lights on. 

                I’m so sorry. I know what you’re going through when the stress, the anxiety, disability, and desire all meet in the perfect storm.

                I’m praying for you guys…

And under that was a meme that said:

Sometimes God calms the storm.  Sometimes He lets the storm rage and calms His child.

I later texted another friend that I was “Zen as fuck” until I read that comment.

I can’t fully express how upsetting comments like this are for someone in my situation.  The idea that my situation is just like a whole lot of other people’s situations is laughable.  To normalize what is incomprehensibly abnormal as a strategy to deny me aid is not one that is foreign, unfortunately.  People love to rationalize their refusal to help their fellow humans as “reasonable” instead of cruel or evil in all sorts of ways.  And the easiest way to do that is to dehumanize the person in need—using racism, classism, moral relativism, or some other ism to blame the needy for their own struggle.  That dehumanization is much more difficult when you sat beside said person in seminary classes and your child was babysitter to mine, so you resort to the second easiest rationalization—the “lots of people” argument.

“Lots of people” have disabilities and they…

“Lots of people” are divorced and they…

“Lots of people” are having financial challenges.  “Lots of people” have anxiety.  “Lots of people” want life to be different than it is.  “Lots of people” struggle.

All of this is true.  So, in the mind of the one arguing for the many, the one is simply an exaggeration of or a dramatic expression of what all sorts of people are dealing with.  They “understand”.  They “sympathize”.

Bullshit.

I call bullshit.

And I get to call it because of this ugly feeling in the core of my being whenever I get to read these sorts of comments under my vulnerable posts.

Ironically, just above this comment was a series of comments and replies that talked about how I hate to open up because of the times that I opened wide my arms for a hug and got a gut punch instead.  This “lots of people” comment is a gut punch where there should be an embrace.  And I will tell you why this feels like a gut punch.

My vulnerability is not something that is shared by lots of people.  It is an intimate thing, to share my heart and my deepest wounds and fears.  To say that lots of people are touched in the same way—even if it were true—is a betrayal of my trust.  This comment is akin to a friend confiding in you that they were raped, and you saying, “Lots of people get raped.  I know what you’re going through.  Sometimes you need to let go of shit and let God change your perspective.”

Gut fucking punched.

I’m deeply involved in all sorts of methods for changing my perspective, by the way.  I meditate almost every day.  I practice yoga.  I practice gratitude daily.  I use several mindfulness practices, and I have all sorts of routines in place to keep my heart open, my outlook positive, and my disordered thinking in check.  When I said that I was Zen, I meant it.  I could not have been calmer when I received that offending comment.  And I addressed it in the calmest manner possible:  I ignored it.  I talked to a close friend about how it made me feel, and she supported me through the event and helped me to keep a positive perspective throughout the situation.

So, even after being gut punched by the insensitive rationalizing comment, I kept my cool demeanor.  I didn’t need “God to calm his child”.

But the storm is another story.

The storm should NEVER have been here in the first place, and yet it rages on.

This common little meme, and the saying upon it, are very upsetting for me.  They assume that the things in life that harm us are somehow meant to be hanging around our heads so that God can teach us some sort of lesson in how to keep our cool under pressure.  And I don’t understand where that idea comes from, but it is a terrible sentiment, and we need to put an end to it.

My challenges stem from disabling conditions, yes.  And those disabling conditions might never go away or be cured.  I understand that a certain amount of coping is required for me to navigate life with those conditions.  In that sense, there with always be challenges.

But “the storm” for so many of us can simply go away if people stop using the rationale to avoid helping one another and affect change.

My storm includes a system that doesn’t fully support those in our society who have disability, and only offers me $750 in cash and $15 in food benefits, plus a housing stipend.  Adding those together doesn’t make a livable situation, and I am constantly in need and constantly in danger of losing my home, starving, not having my medications, or some other disastrous challenge.

My storm also includes the challenge of mental illness that has been present since early childhood, and which left untreated for so long has influenced my life in countless ways, making it impossible to consider any decision I’ve ever made one that wasn’t made under duress, and challenging me to figure out who the hell I am, and why.  I don’t need a midlife crisis, because I’ve never had an independent identity—my crisis is ongoing.

My storm includes a divorce from a horrible man, whose damage to my person and my psyche cannot and should not be downplayed, for any reason.  And that also means an absent father is a part of my daughter’s storm—and the storms of our children influence our own storms.  The weight of being a single parent goes far beyond “single income” households—and I’ve generally had a no income household, because of my difficulty with employment due to PTSD.  Having a completely absent parent, who contributes in NO way, is not anything that a person who lives in a two-parent home can ever imagine.  It still infuriates me when married people say things like, “I’m a single parent for the week”, when their partner is away on a trip or something.  Having a partner who is physically absent for a matter of days is nothing like having no partner at all.  You still have all sorts of support, financial and emotional just being the tip of the iceberg.  You can’t imagine none of that being present, ever.

My storm includes debt totaling over $250,000.  Most of that is from student loans, and much of the rest is due to the three years’ time that I spent waiting for my disability claim to be approved.  I was unable to work and waiting for the Social Security Administration to look at the body of proof that I was unable to work and sign off on my meager $750 a month payment.  In the meantime, I had nowhere to turn but credit cards, my dad, and charity.  So, I owe far more than I could ever pay back on my own, but I am not eligible for programs that would forgive these debts.  So, I sit and owe, and the interest just increases the amounts and increases the amounts.

My storm includes the complicated situation where my adult daughter cannot be considered an independent student, according to the rules of the government, but I cannot claim her as a dependent, according to the rules of the government.  This leaves her with a shortfall that other students don’t need to deal with regarding their own financial aid.  She can’t take out more money, but I can’t take out money on her behalf.  Because she is in this weird limbo state, because I am a disabled individual.  This isn’t her fault.  This should not be a storm she needs to weather, because I should be able to provide for her.  But I can’t.

So, my storm also includes the constant feeling of guilt because I cannot offer my daughter enough to put her in a position where she is on equal footing with her peers.  She isn’t set up for success.  She doesn’t have the advantages that her cousins and her friends and the children of the commenter on my post have.  I can’t offer her a chance at starting out at zero sum and working her way up from there.  She starts with my handicap.  She starts at the back of the pack, because I can’t give her an education and rent money and clothing and food and care packages and enough love to make up for the losses that she has suffered and the abandonment that she has felt.  I have loved her fiercely.  I have done and continue to do all that I can.  But it will never feel like enough.

My storm includes shame.  So much shame.  Not being a pure virgin girl, and not knowing how to stop being abused, and not understanding what that abuse even was or meant.  The shame of hiding and the shame of secrets and the shame of difference.  My storm later became one that was volatile and violent and full of rage—so much rage.  I felt like I was the storm, or like the storm lived somewhere deep within me and it was trying to get out and I was desperate to hold it in—failing to hold it in.  And then the storm became the shame of promiscuity and feeling like all of those words that are used to keep women captive—whore, slut, bitch—were the only thing that I could be, tainted that I was.  And it felt good to be used in a sense, until it was over, and then the dissociative state wore away and the wave of shame washed over again and I started holding in the storm again, as long as I could … until the next time.

My storm includes being all the people that you could rationalize away as not quite human.  Homeless.  Addicted.  Divorced.  Unemployed.  Mentally ill.  Using my body as currency.  Shielding my body from blows and then crawling into bed next to the one who wielded them.  Perpetually single.  Having sex with partners that were not my husband.  Having sex with partners who were not men.  The girl who stays out too late.  The girl who mows her lawn on Sunday.  (Oh, yes.  Some people consider that a grievous offense!)  I received anonymous notes about my bad behavior.  I was told I could lose my scholarship for having sex.  I got dirty, side-eyed looks from others.  When I talked to your husbands after church, you would suddenly appear at their sides and pull them in a different direction—like talking to me would lead to me stealing them away to mow lawns and suck on body parts by sundown.  In truth, I was just interesting and unconstrained by convention.  It’s an attractive thing to be interesting and unconventional.  (Translation:  read some books not written by female bible study developers and then discuss the contents with your husband … he’ll be mowing your lawn in no time.)

So, my storm also included years and years and years of not having my needs met. Hence the comments about opening my arms for a hug and getting a gut punch.

I’m still not surprised when I open myself up and somebody hits me hard, instead of offering me love and support.  Unfortunately, it is what I have come to expect.

The dumb thing about that meme is that you don’t have to tell me that the storm might not go away.  I fully expect that storm to fucking tear me to pieces and kill me.  It takes weekly therapy, twenty drugs, a host of friends, and all sorts of self-care strategies to convince me that the storm can be survived.  It takes every ounce of energy I can muster to get up in the morning and face the storm again.  It takes all manner of strategies to be my Zen self in the midst of all this chaos and terror and shame and unmet need.  But I do it.  I do it day after day after day.

I keep on facing it.

And some days the storm wins a little, and I freak out on a new potential partner with a host of doubt and shame and fear.  Other days I wake up and counter that with a bit more of the Zen and apologize and open up and tell him why I reacted that way, hoping that he will meet my need and connect with what I am saying … and not gut punch me while my arms are open.

But I face it.

And your job, as the people who would support me, is not to remind me that there is this big, ugly, terrifying storm that I am working so hard to live in the midst of without losing my shit.  Your job is to do everything that you are able to make that storm disappear.  Your job is to offer support where there wasn’t any.  Your job is to accept me and not shame me.  Your job is to love and not harm me.  Your job is to prove that the storm isn’t going to win, and that we can make all of that crap go away by being better than the crap.  We can change and grow and not hurt one another anymore and counter the falsehood with truth and slay the dragon of cruelty with a sword of kindness and acceptance and love.

That is the only way I know how to continue to face the storm—by trusting that we can eventually find calm skies for everyone.  Without that assurance, facing it is a worthless effort, and I may as well off myself now.  (That isn’t a suicidal statement, fyi.  That is me drawing on the extreme to make a point.)  Because if there isn’t an end to the need and the shame there isn’t really a point in moving forward.  And I don’t mean just the money—I mean the need for understanding and connection and love.  But I define love as “meeting needs”, so the money is a part of the equation.

If you are to assist another, you need to do more than tell them that there is struggle all around them and to work on their perspective.  You need to work to end the struggle.  Because no matter what your perspective is, if the struggle persists, you aren’t doing what you should be doing.  You aren’t helping.

I know that standing up against the storm isn’t an easy thing.  It is much easier to say, “Check your perspective” or to hide in some shelter and hope that the storm passes.  But for many of us—and for me—the storm rages on, indefinitely.  And that storm can’t stop.  It won’t stop without the change of perspective from many other people who are not me.

It is often not the people suffering, but those who are unaware of or those who are causing the suffering who need to change the way that they are operating in the day to day.  I’m usually not the one doing things “wrong”.  I’m generally suffering because of the things that are unjust, not the things that I cannot accept but that are perfectly fine.  And the ones suffering an injustice generally don’t have any power to make the change required to stop that suffering.  If they did, the change would happen hastily and without resistance.  Because, despite the lies that many in power like to feed you, people don’t wallow in poverty and addiction and illness and homelessness and sex work because they want to.  Just like Kanye West is an idiot for presuming that slavery was/is a choice, anyone who thinks that people live in the middle of storms because they like how lightning feels is an idiot.  Those people don’t have the shelter they need.  You must find ways to provide it for them—preferably by asking them how you can best provide them shelter.

Robert F Kennedy once said:

Each time a man stands up for an ideal, or acts to improve the lot of others, or strikes out against injustice, he sends forth a tiny ripple of hope, and crossing each other from a million different centers of energy and daring, those ripples build a current which can sweep down the mightiest walls of oppression and resistance.

This is the type of shelter-building act that we need in response to those who are in the middle of storms opening their hearts and asking for assistance.  Building currents that sweep down walls—sweeping away the clouds of the storm and bringing, perhaps for the first time, calm, blue skies, should be the goal that we aspire to reach.  Asking people to be quiet and calm in the middle of injustice is not the answer.  Fighting against injustice is the answer, on the grand scale.

And meeting me in my storm, with open arms and an embrace—not a gut-punching meme that seeks to discredit my need, devalue my expression, and normalize an injustice.

When you are met with someone who opens up and seeks to be authentic and disclose their struggle, don’t tell them to sit quietly in chaos, please.  Don’t ask them to be happier with the injustice that swirls around them.  Act to improve their lot.  Strike out against injustice.  Send forth that ripple of hope.

And if you won’t do all those good things, at least stop sending gut punches.

 

Contribute to Christy’s fundraiser here if you wish to help lessen her storm’s raging.  Thank you!

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Avoidance

I’m supposed to be paying bills.

But there isn’t enough money.

So, I am doing this thing that I do.  Some like to call it procrastination, but I’ve started to use terms that are more honest wherever possible, so this thing is called “avoidance”.

When the thing cannot be done comfortably, efficiently, without stress, or with relative ease, I avoid doing the thing.  “Avoidance”.

Right now it is about the bills, because there is stress, discomfort, inefficiency, and a bit of struggle involved in trying to figure out how to make money multiply without a magic wand or the art of alchemy to assist in the task.  I don’t know what to pay and what to leave unpaid.  I don’t know who might be gracious and who might attack the credit score I have been working so hard to improve.  I know that all of the things need to be paid, eventually.  And I know that one way or another, through begging or borrowing or more high interest loans that bury me in even deeper debt, things will be paid, but that doesn’t make the job of maneuvering and managing a too small budget less uncomfortable or less stressful, so I still want to avoid it.

A long overdue blog post is better than an attempt at bill payment … even one that details the stress I feel over the bill payment attempt.

I think that part of this avoidance is built into our DNA.  We didn’t survive as a species by running headlong into danger with great stupidity and zero planning.  We avoid situations that seem like losing scenarios as a matter of survival.  Avoidance helps us stay alive, in many ways, so it can be an excellent mechanism for the continuance of the human race—which is likely a good thing.

But there may also be a negative side to this tendency toward avoidance.  That negative side is the part that I think frequently trips me up and leaves me face down on the proverbial pavement of life.  It is the tendency of our culture to avoid any sort of suffering, pain, or pretense of unease—or dis-ease—whatsoever.  It is the glossing over of the lament in favor of pretending that all is well and good and easy, all of the time.  It is the lie that we don’t just avoid the things that are uncomfortable, but that the things that are uncomfortable don’t exist—and if they do exist, that something is wrong and needs to be “fixed” and fixed immediately.

If you’ve read anything else that I have ever written, you already know that I suffer from chronic illness, both mental and physical in nature.  Something will always be “wrong” with me.  And the desire to either “fix” or deny the existence of the problem is, therefore, always with me.  I’ve found, through many therapy sessions and lots of searching of my own spirit, that this desire is based largely on cultural perceptions.  It is shameful not to “work”, “have a job”, “do something with your life”, “have a purpose”, and it is shameful to “beg”, “live off other’s hard-earned money”, “take what I didn’t earn”, “play the victim”, “act sick”, “sit on my ass all day”, “be lazy”, or not “suck it up”, “get over it”, “take some Tylenol and get off my butt”, “push through the pain”, or to be like “my friend”, “my husband’s cousin”, or any number of other people and “run 5k’s”, “go to work every day”, “take care of five kids”, even though they have [insert one of my illnesses here] “just like you”.

Not only do I cope with my illness every day, but I deal with the public perceptions and the cultural shame that goes along with being chronically ill.

A court has determined that I cannot work—that there are no jobs that I can do given my particular limitations, diagnoses, skills, educational background, work history, symptoms, and the way that those things intersect with the job market in my geographical location.  “There are no jobs.”  That is literally in the court transcript for you to read, if you were to read through the lengthy hours of Q and A that were required for us to get to the point where a judge determined that I am disabled.

But that transcript doesn’t matter to probably about 85% of the people who I come into contact with in my day to day interactions.  It doesn’t matter because of this negative sense of avoidance.  I’m supposed to avoid suffering and illness and flaws and bad shit.  I’m not supposed to acknowledge that, but fix it, and fix it fast.  I’m not supposed to admit that I can barely sit at this desk right now because of the pain in my back.  I’m not supposed to admit that I’m at this desk and not a “work” desk because I am disabled.  I’m not supposed to BE disabled.  I’m supposed to take some Tylenol and get off my ass and run a 5k like aunt Janet from West Virginia!

Because we avoid suffering.  We get over that shit, or we lie about it, or we become the kind of people who complain all the time but only a small, acceptable, mundane amount of complaining that is socially acceptable around the water cooler at our jobs.  Because we are allowed to be moderately miserable all the time if we are still productive.  But real, serious, deeply affecting problems are not socially accepted.  Those we avoid.

I sometimes wonder who decides which challenges are acceptable and which are not.

When all the women have ovaries that stop producing more eggs, we call it menopause and call it normal.  When all the men start having limp, less adept penises and lower sperm counts, we call it “erectile dysfunction” and make a billion-dollar industry out of making them hard again, instead of accepting that aging men can’t always perform sexually on command.  It’s normal for a woman’s sexual function to change, but it is a problem to avoid and be “fixed” for a man?  Who decided that?  The pharmaceutical companies?  The medical professionals?  The sex work industry?  Who made this a thing?

And who made being chronically ill unacceptable but being terminally ill perfectly fine?  That question makes me sound like an asshole all the time, I know.  But it only makes me sound like an asshole because of the perceptions already infused into those terms.  Chronically ill.  Terminally ill.  One is a drain on society.  One is a sainted state worthy of all the compassion.  We all know which one is which.  I’m not the sainted one worthy of all the compassion.  I’m the other.  And I am an asshole for pointing out that there is a bias.  I am an asshole for pointing out that dying faster somehow makes you worthier of care.  (At least in the eyes of many in our society, that is—it doesn’t actually make you worthier of care.)

Who decided that I need a “real job” to be treated like a “real person”?  Who decided that I am allowed to be treated poorly because I am in a state of poverty—or that I deserve to live in an impoverished state if I cannot work due to illness?  Who decided that $750 per month is the amount that a disabled person who has less than 40 work credits should be forced to live on, making this entire post even a thing that exists?  And why do I not get any credits for the early years of my work history when I was delivering papers and babysitting, or for the years when I was working two part time jobs and going to school and raising a daughter as a single parent.  That was more damn work than I have seen most anyone do—ever.  And that doesn’t “count” for anything.  Who decided that doesn’t count as work? Who decided I get $750 instead of $3000 because of those years?  Who decided that my life isn’t valuable enough to be offered what I need to not be sitting at this desk, in pain, avoiding my bills like the plague.

If I had the plague, I would get more benefits.  Because it would kill me.  If you are dying they let you have a better quality of life than if you will live.  Oh wait … not socially acceptable.  We already went over that.

So, this avoidance, this thing that was written into our DNA as a positive survival instinct has somehow become a thing that we use to cover up and shame and deny and harm whatever is connected to our socially unaccepted suffering.  And I don’t know that I will ever get a complete, straight answer about how that came to be, or who determined and decided what was or was not acceptable, but I do hope that I will someday begin to shape the conversation around why we do this, and why we need to stop doing this.

We need to stop avoiding suffering and pain and bad shit that happens, because it happens to all of us.  It is part of the human experience.  And it is an important part of that experience. While much of my suffering was regrettable, and I obviously would choose to go down another path if I could, the person I am today was forged in the flames of that suffering.  Those challenges shaped me.  And they made me a better person.

They didn’t make me a better person right away.  In fact, they led me down a dangerous road to some very dark places.  But that happened when I was trying to hide and avoid and stuff away all of the bad things.  If I had been able to and allowed to cope with what I had experienced as a child, or a teen, in positive ways—expressing the pain and the betrayal and the confusion and the suffering openly and in a safe space—I would have avoided that road and those places altogether.  I might have avoided mental illness and chronic pain altogether.  (Nobody knows what causes fibromyalgia, in distinct terms, so I cannot know that for certain, but it is linked with stress and often presents in tandem with post-traumatic stress, so it is possible that without the PTSD there would be no fibromyalgia.)  Our society’s insistence that pain be hidden likely caused me more pain.

But now that I am in a space where I am able to process and cope with and express all that I should have been allowed to express all those years ago, I am becoming strong and wise and good in ways I might not have were it not for the experience that I went through.

Lament shapes the spirit in beautiful ways.

Pain makes us compassionate, kind, understanding, gracious, loving, connected, and strong.  That is not something that we should hide.  And that is certainly not something we should avoid.

We still shouldn’t run, stupidly, toward danger without a plan.  But there isn’t a need for us to hide and avoid something that makes us compassionate, kind, understanding, gracious, loving, connected, and strong.  Frankly, hiding that seems like a stupid run toward danger … it probably is.  And that is probably why so many things about our society today seem so messed up, in the sense where one person refuses to lay down their “right” for the lives of, potentially, thousands of others.

We are in danger, and we are being stupid.  Because we have hidden so well and avoided so effectively the thing that makes us compassionate and kind and understanding and gracious and loving and connected and strong, that we have become the sort of society that breaks apart and leaves individuals to be slaughtered as “they”, somehow apart from us and without our compassion, rather than feel the pain of the truth—that we have become so unfeeling that we cannot mourn our own brokenness, so we deny it again and again.

We have put some imagined dessert to rights of the individual above the conscious collective of the society.  I now becomes more important than we.  And that is a grave error.

We, the people—that is how it begins.  Not, I the individual who wants a gun and an erection despite the compassion and the biological facts that are required for me to understand the world around me.

“I don’t suffer.  I don’t have pain.  I take a Tylenol and go to work.  I have rights.”

But that isn’t true.  We all suffer.  We all have pain.  We all have days when no painkiller will dull the ache we feel—be it physical or emotional.  And, most importantly, WE have rights—all of us together, in concert, and being accountable to one another.  The only way to accurately see that, is to start to uncover the pain and suffering and to acknowledge it, to express it, to cope with it, and to begin shaping yourself and your life into one that has compassion, kindness, understanding, grace, love, connection, and collaborative strength.

Stop the avoidance.  Embrace the lament.  Feel.  Suffer.  And come out the other side a better version of yourself.

Now, if you will excuse me, I need to suffer through paying my bills.

 

I See Stupid People

There’s this M. Night Shyamalan movie that has an monologue that a friend and I once transformed a bit.  We took the word “dead” and inserted “stupid”.

I see stupid people.  They’re all around me.  They don’t know they’re stupid.

Today I have been dealing with the frustration of not being able to express my frustration at what I consider stupidity.

I should be ecstatic right now.

After months and months of waiting, my housing situation is finally resolving, and I am signing a lease on an apartment!!!!!!

And I am ecstatic, but I am also feeling assaulted by constant texts and calls and questions and threats by the owner of the apartment that I have secured.  It isn’t that they are intentionally being hurtful or aggressive.  They just don’t understand anything about this process and they are continually looking to me for answers.  And I am frustrated to the point of tears, because it isn’t my job to hold the hand of my landlord while they figure out how to deal with a leasing agency or the Chicago Housing Authority for the first time.  They should be looking to the leasing agency or the housing authority for that assistance.  But they are not.  They are basically harassing me because they don’t understand shit.

I see stupid people.

This morning, after assuring the landlord last night that everything was on track with the housing authority, and that the leasing agent would be connecting with the processing department regarding funds I put aside in December and how we would disperse those funds, and saying that I would be in touch as soon as I had news, I got a 9 am text: Any news … on when we are meeting

Shortly after, I got a phone call, and when I explained that we were trying to iron out the details, but all would be fine, and we could sign the lease later in the day, once that was done, I was told, “as long as this happens today”, “we have waited way too long”, “I’m very unhappy with their [the leasing agency’s] service”.

And while I held my tongue and gave all sorts of kind and cautiously worded assurances on the phone with the landlord, a few minutes later, my best friend got a text that said, “I’m just getting upset because suddenly the landlord is like ‘this happens today’ ‘we have waited too long’. And I am like, and I have been waiting since October! I’ve been discriminated against and turned down and stressed out and screamed at and living in fear.  You’ve what? Waited through February for me to pay you for your fucking empty apartment with cash I begged friends and family for? What right do they have to be so indignant and demanding?”

Then I apologized for letting the feelings that were coming up from the interaction with the landlord come out toward my friend.

But at least they came out … because I went for acupuncture for the first time yesterday, and my acupuncturist was telling me about how acupuncture helps release the emotion and stress and trauma and unvoiced stuff that gets trapped in our body when we hold on to all of that shit.  However, if we keep holding it, the problem will remain chronic, because the problem is holding down the shit, and acupuncture can’t stop us from doing that.  We need to learn to stop the cause, not keep treating the effect ad nauseum.

Anyway, the financing was worked out, and the housing authority once again expressed to me, in detail, the situation with the case, and assured me that all is well with moving forward and signing the lease today.  The leasing agency, whose services have been AMAZING, by the way, said they would call and explain the payment details to the landlord, so I don’t need to stress over that anymore and can focus on finishing up packing and getting the lease signed so that my move can happen in two days.

All is well, and I am moving back toward the ecstatic end of the spectrum.

And as the calm sets in, I start to think on my own moments of being a “stupid person” this week.

I got a different phone this week.  In an effort to save money, I switched wireless carriers.  Switching carriers was easy (and saved me a load of cash!).  Transferring my data from one phone to the other, however, proved far more difficult.  I know that the lovely young man in the store told me to take the phones home, update the old one on my computer, reset the new one, and restore.  Somehow that doesn’t work.  I don’t know what I am doing wrong, but I cannot make that work.  I know what should happen when I work through that process, but that isn’t what actually happens.  And in the meantime, I can’t keep carrying around two phones, a watch, and a tablet that are all alerting me to different things and have bits of critical information that need to combine to create a functional Christy.

So, I simply downloaded and signed into and reorganized and started over with apps and calendars and accounts.  But that means when I go to check in with my lovely young man on Saturday to see how I am getting along with my new phone, he can’t even do the restore thing for me, because then I will lose all of the new things that I have done on the new phone if we restore from a tabula rasa.  I no longer have a blank slate to start with.  I’ve worked to create a slate full of organization and function.

Am I a stupid person when it comes to updating phones?  Absolutely!  Am I a stupid person when it comes to advanced mathematics?  Absolutely!  Am I a stupid person when it comes to any number of things that I am not skilled in and do not understand as well as another person?  Absolutely!

Here’s the thing:  I’m really fucking intelligent.  I am.  I’m not ashamed of that, and I should never have to hide that so other people don’t feel less intelligent than I am.  It is totally fine that I am smart.  It is great, honestly.  But I am not skilled in and informed about every subject.  There are lots of things that I am not good at and plenty more that I am not educated regarding.  Sometimes I am the stupid person.

At one point or another, we are all the person who is stupid.  And at one point or another, we are all the person who has perspective, information, and guidance that another needs.  What is most important is not whether we are the one needing guidance or offering it, but how we are treating one another in both of those situations.

When I am in the phone store, and the lovely young man is assisting me to figure out the new technology, I am kind, apologetic, and grateful.  I listen.  I ask for him to write things down on paper if I can’t follow along in my head.  I thank him repeatedly and tell him how valuable his skills are, and how appreciative I am for his assistance.  This is how I be the stupid person.

When I am the person offering the guidance, I hold my frustration for another space and time.  I ask for another to call and explain, since it shouldn’t fall to me to handle the situation.  I say things using different language, and I repeat things when needed.  I offer encouragement and assurances.  I try to remain calm and keep my voice soft, metered, and sweet-sounding.  I send documentation, source materials, and copies of proofs. I do whatever I can to make things clear and calm.  This is how I am when I am the one who is dealing with the “stupid person”.

Somehow, the way you act and react in the situation makes all the difference.  And that is how we get through life without harming one another in all sorts of ways—by not being stupid or smart in ways that are indignant, threatening, stubborn, superior, rude, harassing, demanding, ungrateful, or hurtful in any way.  We manage to learn from one another, and to help one another through the challenges, by being grateful and kind and patient, and by caring for one another through these interactions.

I think that much of what is wrong with America in particular, and the world in general, these days is that we have forgotten that basic common decency.  We have forgotten how to care for one another through these interactions.  I’m not sure how that is possible.

Because we all seem to be crying out to be cared for while we refuse to care for anyone else.

This is a two-way street, people.  It goes both ways.  If you want to be cared for, you absolutely need to start caring for others.  You don’t get one without the other.

It required an amount of gratitude, patience, support from others, meditation, self-care, and self-soothing that I almost could not summon to cope with persons who wanted me to guide them without offering me the care and gratitude and patience that I required from them.  When they didn’t offer me that, I needed to find it elsewhere.  Most people don’t have a wealth of gratitude and support and patience and Zen to draw from.  I’m lucky to have found the value of amassing stores of such things as a tool for maintaining mental health and managing chronic illness, so I have it to call upon in situations where others forget to care in our interactions.  But most are not amassing stores upon which they can draw.  Most are pushed beyond breaking points and that frustration and anger and pain of not being offered respect and care and gratitude fly out into the open, creating volatile and even deadly situations.

What would the world look like if we offered the care and avoided the open expression of that pain?

I think it would look very different.  I think it would look much better, much more kind, and much more beautiful.  I think it would offer us freedom and would decrease our anxiety and fear.  I think that it would bring many of us the peace and the positive feedback we needed to keep on going through the challenging moments.  And it would let all of us breathe a big sigh of relief.

This is the first time that I have the insight that I am the stupid person all around someone else, and that understanding how I am stupid, and how I am smart makes a huge difference in my interactions with others.  I hope that my insight might offer you the opportunity to consider your own interactions.

How do you act and react when you are “smart” or “stupid”?  What ways can you add care to those interactions, and what difference might that make?

I’ll put it out there so none of the comments need to … I used to be an asshole about being smart!  I loved knowing stuff and being smarter than others.  But I think that was largely because there was so much pain in other areas of my life.  I was terrible at relationships.  I was keeping devastating secrets.  I was living in constant fear.  Pain fueled the way I interacted then.  I’m not the same person now.  I’m not the same person in this moment that I was at 9 am, frankly.  The insight I’ve gained while writing this post has literally changed who I am.  But, the last 4 years of therapy, and study, and mindfulness, have changed the place from which my interactions originate.  They don’t always come from fear and pain any longer.  I have new spaces—better spaces—from which to draw.

We don’t need to keep interacting in the same ways we always have.  It can take a lot of difficult work to change how we interact and from where we draw that gratitude and fortitude and support.  But it is worth it.  I believe it can change the world.  That is so worth it.

I Should Be Packing Right Now

The journey to this moment has been long and hard and chaotic and sometimes frightening.  So, now that I am here, I am paralyzed.

This is certainly not the first time that I have fought my way through all sorts of trauma to find myself safe on the other side and stuck.  Just stuck.  It is like my self doesn’t know how to handle “normal” living. Which should not be surprising to anyone who knows me or my story well, because the great majority of my living has been disordered and chaotic and traumatic and totally fucking wrong.  It isn’t a shock to suddenly feel all weird and confused by normalcy and calm.

But it is a problem.

Sometimes you meet people in life whom you believe create drama.  I’m not one of those people, but I do believe that they exist. I understand why people could believe that I am one of those people, however.  Because I share a lot of characteristics with those people, I am sure.

I don’t create drama.  I’m not running around seeking problems and hoping to add them to my list of affairs.  But I do have a life that attracts many dramatic or uncommon or challenging events.

For instance, this past weekend I discovered that my daughter’s father may or may not be the biological child of the man that he and we have believed him to be the son of for many years.  And I found this out from the adult child of that man, whose stories while she was growing up, completely estranged from the “other family” the man had previous to the family he shared with her mother, are the proofs that we have for this new information.  Is he my daughter’s grandfather?  Not according to him.  But that doesn’t change much other than the storytelling gene might be really strong among the men of this particular family.  Or it could change everything, and my daughter, and the father she has never met and does not want to, might have a totally other family they are completely unaware of out there in the world.  And the grandmother she never met—who then is more unfaithful and dishonest a woman than we imagined, which is saying something—is the only one who would know the truth, assuming she is still living (as I mentioned, we don’t exactly keep in touch with her dad’s family).

See.  This creates all sorts of fucking drama.  I don’t want it.  I don’t need it.  It is confusing and chaotic and leads to all sorts of questions that I don’t know whether to answer or leave alone.  And it doesn’t just involve me, but a woman who may or may not be an aunt to my daughter, and a man who may or may not be her grandfather, and a daughter who may or may not want to know the answer to whether or not they are or whether there is an entirely other family out there somewhere.  But then, how do I help her find that identity if we have no way of accessing that information without contact with a family we don’t want to have contact with?

There is an aspect of the life I am now living that creates this complication.  It isn’t necessarily a simple choice to be or not be in the midst of drama.  Sometimes drama comes for you, and you need to figure out if there are any ways to avoid it, or ways to tackle it without becoming completely absorbed by it.

My therapist likes to say, and I am getting good at saying it before she reminds me, that there is “no such thing as normal”.  All of us have some things in life that others cannot relate to exactly.  All of us have some things in life that are relatable to almost everyone.  But there isn’t one way of living life, and there isn’t one way of living it correctly, certainly.

I know, however, that much about my life is uncommon or not very relatable for a majority of the people that I encounter on a day to day basis.

Not many of us can say that we were abused by a relative from a very young age and for an extended period of time, causing us to develop a complex form of PTSD that acts much like the trauma of captivity in terms of brain malformation, and because that disability and that abuse were not discovered or appropriately handled until well into adulthood, repeated traumas of all sorts were added on top of that early trauma, leaving layers and layers of trauma and pain and suffering and alienation and mistrust.  So many layers.  And then, because that trauma was not dealt with appropriately and all those layers were trying so hard to be forced into alignment with “normal” or at least “average” living during the everyday, our bodies took on that trauma and turned it into physical disease.  Or at least that is one theory, and one that I can easily wrap my malformed captivity brain around.  So, in the prime of our lives, as our little birds leave the nest, and we can go out and do anything we want, we are actually left with the option to A) live according to the very strict and challenging rules of the state regarding disability income and expense, letting decisions be made by another in most cases and feeling like we still have no agency all these years after abuses can supposedly no longer reach our bodies, or B) suffer and die.

And all the “normal” people will think that statement is overly dramatic.  But they don’t have the life where the drama attacks you in the calm of a sunny Saturday afternoon when you see a message about a man named Marvin.  They have lives without disordered thinking and layers and layers of trauma.  They have working dominant hands.  They have sisters who answer the fucking phone when they call—for the third time, to wish her happy birthday.  They don’t freeze when things seem good or average or positive.

They call that fucking Wednesday!

Wednesday.

To me it is like hell freezing over.  And, granted, the temperature in Chicago this week could probably freeze hell.  So, maybe that happened.

I don’t generally have the luxury of a normal day with positive normal things happening.  There aren’t many days when some aspect of depression, anxiety, trauma, abuse, addiction, violence, poverty, pain, or some other messy, bad, or unfortunate thing is having an effect on me or the things around me.  And it isn’t that other people don’t also have these struggles.  I know that they do.  I know many people who have similar struggles.  But I know very few people who have ALL of these struggles.  And the compounding effects are significant.

I carry the weight of a hundred traumas—not just three or four.  So, a trauma-free day?  That just doesn’t exist for me.  I cannot imagine it.  And it frightens the hell out of me.

I know that the more I work in therapy, and the more I work to repair or bypass the disordered thought processes that have become normative for me, and the more remedies and treatments I discover, and the more I work to deconstruct what others have crafted and build for myself a self and a life that I love, the more I will have days that are free of these traumas.  At some point, I may even become accustomed to “normal” or “average” days.  (God, I hope not! Lol) But I am not there yet.

So, while I should be rejoicing in the fact that I probably have an apartment, and that all the pieces of the puzzle are fitting together for my move to the northside, where it is safer and I am closer to amenities and friends, I am, instead, writing this.  Because, I have been packing for months through chaos and threats from my landlord, but now that I have the promise of new owners and another lease, I don’t know what to put in a box.  I’m completely stymied by the normalcy of it.

Can I really be getting a decent apartment in a good neighborhood?  Can that be true?  Can I be inside the margin?  Am I allowed that?

Or is the bottom going to fall out and the earth is going to swallow me up, proving that hell hasn’t actually frozen over, but it was just waiting for me to be lulled into a false sense of security before it devoured me?

That question would sound like insanity … except for the fact that the bottom has been dropping out and hell devouring me for the last 35 years.

Yes.  I should be packing right now.  And by later today, or at least tomorrow morning, I likely will be, but for the moment I am processing this news slowly and cautiously—not wanting to get too happy too hastily, just in case.  Not to believe in the good before the good proves itself to be existent.

Yes, people of the Jesus-loving variety, I know what faith is and I need no proof-texting from the book of Hebrews.  I graduated from two seminaries.  But that definition means nothing to the malformed captive brain.  Only proof of the existence of the good works, and the only good guaranteed is that which comes from within, frankly.  I can only control me.

And you can’t control me either, so that is probably a good point to state, just in case that isn’t self-evident.

I don’t make life complicated.  It made itself complicated over time.  And it now doesn’t become easy because I want it to become such.  I don’t create drama.  My life has had lots of events that were traumatic and the traumatic brings along the dramatic.  The trauma doesn’t disappear because I want it to, and the drama doesn’t either.  I need to deal with them, cope with them, work through them.  And that takes time and hard work.

I don’t actually believe that my apartment with fall into hell.  I don’t believe in a literal hell, so that can’t be a thing I believe.  (I wrote a paper on it once for one of the classes in one of the seminaries.  I received high marks.)  But I do believe that the world should be kinder to those of us who have struggled much in our histories as we seek to find stasis in our present.  It isn’t as easy as it looks.

It is easy to believe that walking on flat, solid ground takes no effort if you have never been out at sea.

Stasis isn’t a given in a life that has been largely characterized by turbulence.  And choosing stasis isn’t easy when turbulence feels more natural.  Choosing the unnatural thing continuously until it no longer feels abnormal, or hard, or foreign is a great burden.

Change of any kind is difficult.  But changing patterns in this manner—taking what feels wrong and trying to tell your brain over and over that it is right, despite all sorts of triggering objections, is excruciating.

Packing right now is a devastating choice.  It means hope beyond all telling, and if things go wrong and this apartment doesn’t happen, it means pain that I cannot ever express—not ever … I don’t have the physical capacity to express it and even now, imagining having to express it at some point makes me feel like I must vomit.  That is what this means to me.  That is what choosing stasis means to me.  That is what “doing the normal thing” has invested in it.  I feel like my head might explode and I want to vomit—that is what normalcy is doing to me right now!

I’ll do it.  I’ll get there.  But after almost 5 years of therapy, with 20-some medications, and in the best physical and mental state I have been for some time, this is still an excruciating moment.  So, the next time you cannot understand why your child hasn’t finished their spelling homework, or your neighbor is dating another loser, or your grandpa gets all weird when you mention that son he rarely talks about remember this post.  Remember that sometimes choosing normal is extremely difficult and painful.  No matter how much being and having something—anything— “normal” is what we want.

Be kind to one another.  And for heaven’s sake somebody come over and help me pack these fucking boxes!!   lol

When Comes the Night

“There are low points. There are going to be low points. And if you can take me at the high points, then you also need to take me at the low points. That’s what I have to say.”

My daughter uttered these words with passion and much arm movement a few moments ago. She was preparing to go seek out a job. An acquaintance told me to have her come in and talk with him about a possible position at the business he manages, so she was on her way there to see what that talk would bring about. We both have high hopes that it brings about a job!

She has been looking for a while now. And the longer you look, the harder looking becomes. Many of us have been in that position. The more rejection you suffer, the more difficult any risk of future rejection is to attempt. You start to feel tainted or insufficient in some manner. It’s not a good feeling. And she has been feeling it.

Today she was expressing what I have been feeling as well.

I’ve been struggling with my mental health. I’ve had suicidal ideation—not active plans for death by suicide, but the hopelessness and the feeling that there isn’t a reason to keep living—for a few weeks now. I’m working hard to use my psychological “tool box” of coping strategies to keep myself from slipping farther into deep depression and to find some hope. But it is a huge challenge.

And life keeps moving on, even though I am feeling this way.

Bills keep coming in. Appointments keep popping up on my calendar. Responsibility still beckons me to take care of things and be an “adult”.

I’m at a really low point.

I think that the last time I was this low was more than three years ago. And the time before that, maybe another four. And then two years before that. And eight before that.

I can keep walking it back to age 19. And I know that there were extreme low points before that, but 19 is the age where I start remembering those low points with some detail.

Age 19. Phillip. Night work at the bakery. Drinking—so much drinking. Jealousy. Sadness. Remembering, and nightmares, and not knowing how to understand or cope with any of that. Dropping out. Being called a liar. Weird interactions with men. Being called a slut. More drinking. Breaking up. Wanting to be dead. Learning to use wanting to be dead as a manipulative tool. (Something I would later need to work hard to unlearn—and that tempts me even today, because people finally seem to give a shit when you say the word “suicide”.) Crying. Lots and lots of crying. William. Feeling sick. Not the flu kind of sick, but that empty hole in the center of your being feeling of sick. More drinking. More crying. Running away to find some sort of escape, but framing it in a “new beginning” or “starting over” or “opportunity”, only to run to the next place and the next thing a year later.

It isn’t always as bad now as it was that first time that I remember in detail. Mostly because I now have that psychological “tool box” to draw upon for coping strategies, and I have medication, and a concrete diagnosis, and a weekly therapy session. But it is still bad.

If you take me at my high points, you have to take me at my low points.

But people don’t, do they?

Time after time I am left alone when the low point hits. Time after time the bottom falls out of the relationship when I hit a deep depression. Time after time I am alone when the bank balance hits the red “danger days” of overdraft. Time after time I am raising that child alone—okay just one child, one time, but it feels like a thousand times because you keep doing it every day, and keep doing it long beyond childhood, because the words uttered today were uttered by a 20-year-old daughter, who is an adult, fiercely independent and desperate to prove she can make life better than life was when it came to her.

When my daughter was young, we had a rule for birthday invites. She was only allowed to invite to her celebrations those people whom she believed would also show up to her moments of greatest sorrow. That rule always led to a house filled with random people from all the corners of our lives. Family, my friends, her friends, people from church, people from school, people I worked with, people in our neighborhood. A diverse group who were not connected to one another except through their bond with us came together each year, and met and talked and learned about one another’s lives. It was always a great joy. Later, when she was a pre-teen, we abandoned that rule. Every birthday since has been a source of disappointment or challenge—people didn’t show up, or fought amongst themselves, or broke things in her room, or any number of weird things. The moment we stopped allowing only those who would mourn with us to celebrate with us was the moment that the parties started being stressors and not joys.

As I think about my life now, and I think about the joys and the sorrows, I look back to those parties. I remember that rule, and I wonder why I didn’t work harder to apply it to my own life and relationships.

I am a person who loves deeply, and without many prejudices. (We all have some prejudices, and being honest and forthcoming about those biases is the best way to combat and cope with them.) I offer love to all sorts of people whom others might fear or look upon with shame or judgments. And I think at times that openness has been a place where my armor is weak. Love flows out, and blades of dishonesty, violence, manipulation, or some other bad thing can be forced into that space with greater ease. Being open-hearted means being vulnerable, in some ways. And when I stopped considering who would be there in the low points, but let people join me in the high points, regardless of where they were when I was struggling, I left myself vulnerable in unhealthy ways.

Where were those people in the low points? I don’t really know. They had an excuse for not being with me, of course. But those excuses started to pile up to the point where I felt used instead of loved. And maybe I was. I probably was.

Because for some reason I give people the benefit of the doubt. I assume that they love in the ways that I love. I assume that they stay through joys and sorrows. I assume that they offer love without conditions and avoid judgment and shame. But they don’t.

I love that way. They don’t. (Or at least most of them don’t, or none of them have thus far in regard to my romantic relationships.)

I have people in my life who do love that way. When my mom died two years ago, there were people who came to the wake and the funeral who were there just to see me and support me. I hadn’t lived in that town for several years, but there were a few people who loved me deeply and truly—in joys and in sorrows—who knew that I needed them to be there in that low point. They wanted to be there with me in that low point. I cannot express how much that meant.

Lately, I feel just as my daughter has been feeling—like she was emphatically stating today. If you take me at the high point you need to take me at the low point. And the reason that statement came from her lips is because there are people in her life who are not there at the low points. There are too many people who want the joys but not the sorrows. I feel overwhelmed with the number of people who are not there in my sorrows.

And I should probably look on the bright side. I should probably see the people who are present and loving me through this very low point. But that isn’t what my mind and my heart focus on easily or naturally. What they focus on is the lack of support. What they see is the lone wolf, fighting her battle without a pack to cover over the weakness or the fatigue or the blind spots in her vision—leaving her vulnerable to attack and making it nearly impossible for her to win the fight and survive the day.

Or, rather, survive the night. Because day isn’t what I am struggling with. I am struggling with the darkness. The depths. The most difficult. And that is the space that so few will enter alongside me. That is the place that people don’t wish to go—the arena in which they cannot support me.

I always find it intriguing (and sometimes find it infuriating) that when I post on social media about my financial need or updates about my disability hearing, people do not respond in any way, but when I post a picture of my freshly cut or colored hair a hundred people will “like” the post. Pretty, clean, happy-looking Christy garners support. Poor, struggling, sick-looking Christy gets far less attention. But the poor and struggling and disabled me is the me that needs the most support, not the me on happy days with well-styled hair. People love my joys, and disappear during my sorrows.

When the night comes, people run and hide behind their doors in “safety”. When the night comes, people distance themselves. When the night comes, people offer platitudes in public and judgmental gossip in private. When the night comes, the needy are left alone on the dark street, fending for themselves. And “joy comes in the morning” for those who wake to step out the door (and didn’t have to face the night) with far more ease than it comes for those who were battling through the darkness while you slept in peace. Yes, we have joy that we survived the night. But it is always tempered with the knowledge that we will likely have to endure the fight again when night falls.

My daughter texted that she got a job! Our joy is inexpressible! But it took months of sorrows to get to this day. And those don’t leave us just because of this joy. They linger. We remember the night. We know that we are inches from it at all times. And we know that many who will celebrate this joy were not there to offer love and support during the sorrow that preceded today’s good news.

It begs the question: Where are you when night falls?

Are you inviting the stranger into your home to find safety behind your walls? Are you in the streets protecting the others, who have no supports in this fight? Are you cowering in corners? Are you behind your own door, somehow believing that you deserve the security you have from the darkness because you are better or stronger or worked harder or behaved with greater morality than whomever might be fighting through the dark night of the soul?

No matter what I, myself, am fighting, I always fight for others.

That seems a bit ridiculous at times. I should put myself first, right? I have problems that need solutions. I need money, so I shouldn’t give my change to someone selling Streetwise on the corner. I am sick so I shouldn’t be hugging and holding the hand of the “dirty” homeless and addicts. I can’t take care of myself, so I shouldn’t take in others that need care. Right?

Wrong. I don’t know why I know with such certainty that it is wrong, but I know it. No matter how difficult my own situation, I cannot and will not lose my empathy and compassion for others. I will always help. I will always seek to ease pain for those around me. I will always try to save lives, bring comfort, offer security, and radiate love. Always. Even in the middle of my own dark nights. Even in my own very low points.

If you take me at the high points, you take me at the low points.

Don’t pretend you care and then not offer care. Don’t tell me you support me and then not give me support. Don’t say you love me and then not show love.

If you wouldn’t stand with me during my deepest, darkest, and most devastating sorrows, then do not stand beside me in my joys. You haven’t earned the right to my joys. You don’t deserve my best if you cannot accept my worst. And my worst is bad. It is really, really bad.

I still have suicidal ideation and hopelessness at the forefront of my mind. I still have significant need that isn’t being met. I still have all sorts of stressors and difficult decisions and challenges along my path, and I do not know how to address them or overcome them or cope with them. I’m still in the midst of the low point.

But I also have the opportunity to rejoice with my daughter over her news of employment at a place she is so excited to work. I still have the joy of celebrating the birthday of a dear friend this weekend. I still have the joy of discovering the offending medication that was making it impossible for me to do effective strength training, and to eliminate that medicine, so I could finally get a decent workout in this week. I have so many joys! They simply live in tandem with deep sorrows.

What is the point of this post?

I’m not entirely sure.

Maybe it is meant to whine about the ways that humanity is failing me. Maybe it is to set a boundary for myself, in writing. Maybe it is to offer a lesson to one of those reading, and to help them see that they are being “fair weather friends” and not true friends at all. Maybe it is just something that I needed to get off of my mind and onto some “paper”, so that I could stop playing it over in my mind, and get on with other tasks.

But I suspect that much of it is to give voice to what I have felt for a very long time—that nobody dares to know, to tolerate, or to manage the depths of my pain. They don’t know how. Or maybe they have never felt that low before and it feels terrible, so they stop. They leave me there in that pain, because it is so intolerable. And it is intolerable pain. Which is why there have been so many low points.

But if nobody ever finds the strength and the will and the compassion to join me there, I might never overcome. I might be stuck with that pain forever, or it might overwhelm me.

It is low. It is so low. And I know it is hard, because I feel it every single moment. It radiates through my body, and it poisons my life, and it hurts everything and everyone around me. That’s how low it is. But if I am ever to have joys to share with you, you need to find a way to join me in that sorrow.

If you are going to take me at my high point, you need to take me at my low point.

That’s what I have to say.

 

Done

In therapy on Monday, I said to my therapist, “I’m done!  I’m done.”

And that was immediately followed by the expression, “I don’t even know what that means, because I am not going to kill myself, so I don’t know what I am done with, per se, or what I am quitting, exactly.”

I’m relatively certain that was followed by an “ugh” and a deep sigh … and probably dropping my hands to my sides in a dramatic fashion that symbolized my giving up.

This morning, as I updated my fundraising site, I once again expressed that I can’t go on.  And when I am talking with friends or family about serious topics, it comes up as well—I can’t keep doing this.  I’m done.  I give up.  I can’t.  I can’t even.

I don’t know if other people feel this level of frustration.  I don’t know if it is a “normal” thing to be overwhelmed by life that you do not want to keep going forward with the living.  And, like I mentioned above, that isn’t a suicidal ideation or proclamation.  I don’t want to die.  I just don’t know how to keep on living in this current state.  I don’t want to do this anymore.  I want a different sort of living, I suppose.

Many people want a different sort of living, I suspect.  There are always goals and changes and opportunities that we are reaching toward.  We see an article of clothing, or a car, or a home improvement project, or a new bit of technology, or some other thing that we want and we strive toward it.  Or we admire a person or a way of living that we see outside of our own self and culture, and we seek to emulate the qualities and characteristics of that person or place or way of being.  We want something different—something “better”.  This is true of pretty much all of us, whether we are seeking more, or less—the minimalist or the consumerist lifestyle.  We are working toward something that we currently do not possess.  We are seeking change.

I think that what I feel, however, and what a lot of people in marginalized spaces or situations feel, is a bit different than that sort of desire and that sort of change.  There isn’t just a drive to be different.  There is a desperation.  There is an evolutionary demand for fighting to survive.

I was watching the show Sense8 on Netflix the other night, and there was a line that struck me.  One of the characters said that he realized he was slowly dying of survival.  And that resonated with me so much that it brought me to tears.  Because it is not only my situation, but the situation of millions of people like me.  We are slowly dying of survival.  And I am just coming to realize it, like Mr. Hoy on Sense8.  It is breaking me.

Nothing has broken me so much that I couldn’t get back up and keep fighting.  I have more sequels than Rocky Balboa could ever have.  Even if he keeps training up new, young recruits until his death, I’ve still got him beat in the comeback department.  Over and over and over, I survive what the world throws at me.  But that is the best and the worst thing.  I survive.  I survive.  I survive.  And that isn’t enough.

We aren’t meant to survive.  Not just to survive.  Not only to survive.

We are meant for love and beauty and good.  We are meant for the Arete of the Greek philosophers, so long ago.  We are meant to thrive, to create, to live, to love, to transform.  And surviving doesn’t let you do those things.  Surviving makes you cautious, paranoid, isolated, resourceful, resilient, manipulative, strong, intimidating, disconnected, dissociated, and a great fighter.  And some of those things can be positive qualities—most of them can be positive under the right conditions.  But those of us who are fighting to survive are not living under the right conditions.  We are living under the worst fucking conditions, which is why we are working so hard to survive.  And the skills that we need and master to survive are not skills which help us to thrive, create, love, and transform.  Those skills aren’t the ones that offer us the love and beauty and good.  We survive to death.  We just keep on making it past the obstacle that is most immediately harming us and our life, and then looking to the next obstacle.  There isn’t room for anything but the fight.  We fight, we fight, we fight, we fight, we fight, we fight, we die.

Because fighting obstacles doesn’t change the world.  Creating new systems and eliminating the ones that are harmful and unjust changes the world.  Developing programs that increase wellness and decrease poverty, sickness, and violence changes the world.  But we don’t have the opportunity to create and develop, because we are so busy surviving.  We are so busy fighting that we don’t have the resources left to create and develop.  We don’t have what we need to thrive.

And the people who are not surviving—the people who don’t live in our situation, and don’t feel the weight and lack the resources and don’t fight the obstacles every moment of every day—don’t spend their energies (for the most part) creating and developing the systems that would change the situations of those of us who are marginalized.  Because they aren’t the ones fighting the unfair fights, over and over and over again.

At some point, you stop wanting to fight.  I’ve reached that point this week.

I can’t do it anymore.  I can’t keep fighting battles in a war that I know cannot be won.  The futility of the military action in Vietnam comes to mind when I think about what I feel today.  So many young men were injured, killed, and left with life-long mental illness because of that action.  And nothing was won.  There was no “victory”.  The westside of Chicago is the Vietnam of my age.  The southside of Chicago is the Vietnam of my age.  But the “enemy” isn’t quite as clearly defined here.  The enemy is us, and we are also the one battling.  It is a strange thing.  It is a confusing thing.  And while I don’t understand why we are fighting battles against ourselves in our own cities, and I don’t understand how we, the victims, are blamed for the fight, I do understand that we are fighting to survive this war.

And we are slowly dying of survival.

The thing that is crazy about all of this—well, one thing, because there is so much crazy about this that I cannot even begin to express all of it—is that it doesn’t matter that I am too tired and too frustrated and too raw and too pained to go on.

I need to go on, or I need to die.

And my instinct—my evolutionary imperative, coupled with my very high dose of antidepressant medication—will keep me alive.  I can’t give up, even though I want to.

I can’t choose to be done.  I can’t be done.  I need to fight the next battle.

So, where does that leave me?

Done.  But not done.

Do I work hard to develop hope, just so it can be dashed once more?  Do I adopt a rote series of movements and dissociate from my actions, protecting my heart from more pain, but closing it off from love and good and beauty in the process?  Do I fight hard and believe that this time will be different, only to find another obstacle on the other side, and to break down once more?

I don’t know.

This post doesn’t wrap up in a sweet little bow.  It ends in a sorrow.  It ends in a question.  It ends in a desperation and a struggle that doesn’t seem like it will ever end.

And that sucks.

I don’t know what comes next.  I don’t know how I will respond to the next moment—the next challenge, the next need, the next unpaid bill, the next overdraft, the next pain, the next fatigue that cannot be overcome, the next spike in my heart rate, the next gunfire heard, the next overdose witnessed, the next rejection, the next extension, the next continuance, the next whatever the fuck gets thrown my way.  I only know that I have one option:  to face it, and to fight it, and to hope that I can overcome.

If you don’t know what that feels like, you should seek out someone who does.  Listen to them.  Learn from them. Help them. Try to find ways to develop and create systems that help and do not harm them.  Offer them the chance to thrive, instead of allowing them to slowly die from surviving.

I don’t know the end to my story.  My journey continues.  A new friend told me this morning that “my best version” is coming.  That gave me a tiny glimmer of hope, and reminded me that the end isn’t here until the end is here.  And this day, I believe, is not my end.

So, I am still moving toward my best version.  I hope that version includes creation and beauty and good and wisdom and love.

For now, I fight on.

Up Again

It’s been difficult to write.

That’s not entirely true.

It’s been difficult to write something that doesn’t sound like suicidal ideation blended with complaint and condemnation and a little bit of protein powder to make an “I fucking hate everything and everyone and can’t remember why I keep trying at life smoothie”.

And I am relatively certain that nobody wants to read that.  Or taste that.  Or whatever.

On the bright side, I’m not literally suicidal.  And all sorts of pop songs are cycling through my brain—not death metal—so, all is not lost.  Though I did tell my dad yesterday that things were going to get very Dantesque around here if I don’t get a ruling in my case soon.  “Abandon all hope, ye who enter here”.

But for the moment, I am only a depressing mess in written word, not in other facets of my life.

Today I have been wondering about that a bit.  And I am wondering if there is an element of true self and false self, or of seen and hidden, or of private and public, that is expressed through the writing and being.  Is there a tie that binds my writing with my deepest feelings, and keeps it honest?  Or is the best of me brought out in person, leaving the struggle for the page?  Is there some way that my craft expresses only one bit of me and not another?

I don’t know how to answer that.

And now I am tired.  Tired beyond all telling or explaining.

Just considering one or two questions exhausted me.  And my splint just hit buttons without my consent and tried to send my document over the internet for translation?  What the fuck, splint? Why are you acting out?  I know why the dog and cat and offspring are cranky—not enough play time, no fresh litter liner, and no access to cigarettes or boyfriend, respectively.

And I am cranky because everything and everyone else needs and wants my attention and affection and compassion and concern.  But I don’t even have enough of that for me.  I can’t give what I don’t have.  But I keep on trying.  I’m a fucking bleeding turnip.  I’m a fucking bleeding stone.

So, while the dog is fed and the cat is sleeping in the window and the temperature is below 80 degrees and the daughter is out, I’m going to stop trying to express my thoughts and start taking a nap.

Because the one thing I know for certain is that no matter how many times I fall, I’ve always gotten up again, and I think that is the truth for all of us in this household—whether I hold us up, or whether the others lift me up, or whether we all take turns dragging one another from the depths.  And lying down this afternoon gives me an opportunity to wake in an hour or two, and get back up again.  Rested a bit, I hope.  Ready to fight—in the good and righteous way where we make it through life no matter what challenges are thrown our way.  And the longer I have fought, the more I have learned that you stop the monsters by throwing back love and kindness and good.  So, I need to regroup and give myself the attention, affection, compassion, and concern—the care and love and kindness—so I can keep putting it out into the world and overcoming the challenges.  That’s right: We fight with care and love and kindness.  It’s the only way to win.  It’s the only way to get back up again.